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Riley Winchester nonfiction

Hit That Ridge Again But This Time Hit It Full Speed

By Riley Winchester

In the summer of 2003 I flipped a go-kart on its head in an attempt to impress my dad. I didn’t intend on flipping the go-kart, because my dad didn’t have some weird fascination with upside-down quadracycles, but in my attempt to impress him that’s ultimately what happened. What I was doing was following a simple order he had given.

Before the flip, I had been putzing around in the go-kart all afternoon with my younger sister Kylan in the passenger seat. We drove back and forth and around in laps in a brown barren field across the street from our house. I imagine we looked so tiny and slow in our cherry red 110cc go-kart, traversing the dry vast field like a Ford Focus driving through a Mad Max movie.

Across the street from us, my dad stood in our driveway and watched while he ate from a bag of cheddar cheese curds. At the time, I thought he was the biggest and toughest person in the world. He stood six-feet-tall; he wasn’t heavy but he was by no means thin—he had a small swell for a stomach, a flat chest, muscular biceps, and broomsticks for legs. 

I grew bored of driving the same routes and Kylan was too scared to drive, so I turned the go-kart back toward my house and started home. I was ready to take a break from driving and do my usual summertime activities, like reading lowbrow juvenile literature or paralyzing my mind with Nickelodeon.  

On the way back I hit a small bump in the ground that I hadn’t ever hit before. I was going slow enough that the go-kart only did an underwhelming little jump, bouncing maybe half an inch off the ground. I didn’t think much of it and kept driving toward my dad.

The closer I drove toward him, the more I noticed how excited my dad looked. His eyes had ballooned bright and his cheese curd chewing had been enlivened into cheese curd chomping. I stopped the go-kart about ten feet away from him and he ran up to the driver’s side and squatted down to talk to me.

“Did you feel that?” he said with a wide smile and raised eyebrows.

“Feel what?”

“That jump!”

“Uh,” I thought for a second, “yeah, I did.”

The smell of cheddar cheese emanated from his mouth and pervaded the air between us. My eyes squinted as I looked at him, attempting to block out the sun. Kylan sat silently in the passenger seat, not yet old enough or familiar enough with my dad to know what was about to come out of his mouth. But I knew, and I could already feel the nerves building up and the knot in my stomach cinch tighter and hotter.

Then he said it.

“Hit that ridge again but this time hit it full speed.”


Nobody asked for the go-kart but one day my dad came home with it and surprised us all—my mom, two sisters, and me. He had somehow jammed it into the bed of his pickup truck, and when he returned home he fashioned a homemade ramp to drive the go-kart down out of the bed. But since it was a kid’s go-kart, he couldn’t fit behind the wheel to drive it. So my first time behind the wheel of a go-kart I had to drive in reverse down a steep decline on thin planks of wood that had been rotting in the back of our barn for at least two full presidential terms.

I think it took me forty-five minutes to drive down the five-foot-long ramp because my foot was anchored on the brake and only let off it for millisecond-long intervals.

It was around the time of both mine and Kylan’s birthdays, so my dad justified the go-kart purchase by saying it was a shared birthday present for us. That summer I was hoping for either some new Yu-Gi-Oh! Cards or the latest releases in the Captain Underpants series—Captain Underpants and the Big, Bad Battle of the Bionic Booger Boy, Part 1: The Night of the Nasty Nostril Nuggets, and its sequel Captain Underpants and the Big, Bad Battle of the Bionic Booger Boy, Part 2: The Revenge of the Ridiculous Robo-Boogers. And I doubt Kylan had a go-kart on her birthday wish list. Nevertheless it’s what we were stuck with that year.

This wasn’t the first instance of my dad coming home with a new toy—as he called them—nor was it the last. At least a couple times a year he would come home with a quad or a UTV or a golf cart or some other small engine vehicle either packed into the bed of his truck or hauled in a trailer.

The funny thing was my dad always claimed the toys weren’t for him, even though we all knew they were. If he came home with a youth go-kart that he couldn’t fit in and drive, we knew his reason for buying it was so he would have something new to tinker on in the barn, a new engine to tear apart and figure out, a new project to consume his evenings and weekends.

My dad was a worker, blue-collar as they come, and he believed in the virtues of work, work, work, and then, when all the work is done, find some more work or make some more work. This was something I never understood. I didn’t like work, not one bit. It made me tired and sweaty, so why would I ever seek out more of it?

I thought my dad had some rare, still undiscovered mental illness—or at least some shades of masochism—because of his psychotic predilection for work. To me it was an unhealthy obsession with labor and an equally unhealthy aversion to leisure. We couldn’t have been more different in our philosophies.

My dad never sat still or slowed down. When I would help him finish a project in the barn, I thought I now had the freedom to sit and relax inside, read a book, study for tomorrow’s spelling test, level up my team in Pokémon Ruby on my Game Boy Advance. I would turn and start walking toward the house, then my fantasy would be interrupted by something like, “Grab me a 9/16 socket and a flashlight. And get under here and hold the light for me. It’s darker than rabbit shit—I can’t see a damn thing under here.”

His go-go lifestyle never allowed him to sleep in either, not so long as there was work to be done. And there was always work to be done. If I ever slept past 7:30 a.m. on weekends, my dad would Kramer-burst into my room, turn the light on, peel my eyelids open, and say, “Get up, don’t sleep your day away.” It was 7:30—the moon still hung hazily in the sky, the grass was blanketed with morning dew—and my day was already in danger of being slept away. When I would grumble and plead to sleep in for another hour, he would say, “Tough shit. When I was your age I was waking up at four in the morning to go milk cow tits.”

He wasn’t a man to ever slow down and stop and smell the roses, simply because he was too busy digging up an area for a new rose garden somewhere else. I didn’t understand. I liked slowing down and smelling all the pretty roses.


I swallowed down the gigantic nervous lump in my throat and said, “OK.” The word smacked of cowardice as soon as it left my mouth. I didn’t want to hit that ridge again, and I sure as hell didn’t want to hit it full speed. But I knew this was a rare opportunity for me, an opportunity to show my dad that I wasn’t weak or scared, and prove to myself that maybe we weren’t as different as I thought we were.

I turned the go-kart around and drove back toward the field, toward the ridge I was supposed to hit full speed, and away from the safety of my house. I sat at the end of the driveway, neurotically scanning back and forth across the street, checking for cars that I knew weren’t there. We were way out in the boondocks, no cars or any signs of civilization were within a country mile. And I knew that, but I needed to bide my time as long as I could before my imminent ridge-hitting death.

The go-kart trundled through the field. I stared at the ridge as I drove past it. I stared at it like an abandoned baby zebra stares at a clan of hyenas during a hungry summer in The Serengeti. Once I had driven what I thought was far enough past the ridge, I turned the go-kart around so I could hit the ridge while driving toward my dad. I figured if I was going to die trying to impress him, he ought to see it.

I looked at Kylan in the passenger seat—quiet, innocent, blissfully unaware—and wondered if I would be posthumously charged with murder after I inevitably killed us both.

The go-kart and I were still. My arms were rigid, hands glued to the wheel, right foot scared of the gas pedal. Sweat percolated through the papery hairs on the back of my neck. I licked my lips. They were dry, like the field I was about to barrel through at full speed against my will. The go-kart engine hummed, soft and unassuming. I took a couple deep breaths. I looked across the street toward my dad but all I saw was a fuzzy outline. The field ahead of me was speckled with heat mirages, looking like I was about to drive through a dozen little puddles.

Something possessed me—I don’t know if it was a murderous demon or a surge of dumb courage—and I hit the gas.

The engine screamed and I felt the stuffy air wash over my face as I charged toward the ridge. My foot pinned the gas pedal to the metal frame below it. It felt like I had broken the sound barrier in that brown barren field. I was going too fast and my mind was too scrambled to see where the ridge was. I started to panic, but my panicking was interrupted.

I hit the ridge.

And this time I hit it full speed.

The go-kart did a weak one hundred eighty degree flip, slammed back into the arid, compacted dirt, and kept moving forward on its head, sliding through the dirt and leaving a trail of red paint chips and indents in the earth.

When I finally came to, and when I finally found the courage to open my eyes, I looked straight ahead, out at the tree line off in the distance. It looked different now, like the trees were coming out of the sky instead of the earth. Kylan cried and screamed, castigating me for being stupid enough to flip the go-kart. Physically we were both unharmed—the roll cage, seatbelts, and helmets ensured that. But we were handling the mental trauma differently. Me, in shock and silence. Kylan, in tears and screaming.

I heard a familiar voice over Kylan’s screams.

“God damn! You really hit that, huh boy!”

My dad squatted down and looked at Kylan and me, still dangling upside down.

“I didn’t expect you to flip the damn thing,” he said.

He manhandled the go-kart back upright onto its four wheels and pulled Kylan out of the passenger seat.

“I’m gonna walk Ky back, OK?” he said. “You drive it back and pull it into the barn, bud.”

I tried to tell him I was too scared to drive it back but I couldn’t get the words out. It felt like concrete had been poured down my throat. It was then I realized I was nothing like my dad. He could flip a go-kart and get right back on it. I didn’t want to flip go-karts, let alone even drive go-karts. I wanted comfort and stillness and safety. I wanted to be anywhere but behind the wheel of that stupid go-kart in that stupid field.


Years went by and things remained the same. My dad continued his busy lifestyle, and I continued to do, and be, the opposite of him. He spent his time playing around with motors and listening to classic rock on the old radio in the barn. I spent my time playing online video games and listening to prepubescent boys call me slurs and say how they all had defiled my mom.  

Then in November of 2013 my dad was diagnosed with stage IV colorectal cancer.

Life hadn’t just thrown a couple speed bumps his way, it had laid out miles of spike strips ahead of him.

Still, he continued, to the best of his ability, to live the same life as he had before. He underwent a total colectomy in March of 2014, and his colon and the cancer were removed. He was fitted with a colostomy bag, which was now, without a colon, his only method of releasing excrement. He joked that he now saved so much time without having to stop what he was doing to use the bathroom, and he could be even more productive than before. Life, he thought, had regained a sense of normalcy.

But the normalcy was short-lived.

Seven months after the total colectomy, the cancer came back, and this time it refused to be defeated. The cancer perniciously took hold of his body and destroyed it from the inside out. It spread to his lymph nodes, his peritoneum, his lungs, tumors invaded his back and lumped along the crease of his spine.

By December of 2015, the cancer had completely seized his body and there was no hope of recovery, not even a miracle could save him. There is nothing else in this world that weakens and destroys someone like cancer, not even the most destructive war or brutal fight. Nothing else can strip someone of their essence, of their self—these always remain, even after the worst defeat. But cancer will. It will take these elements of someone’s being and shatter and trample them into the dust for everyone to see.

My dad was admitted into hospice care where he was put into a medically induced coma. His body was plastered with Fentanyl patches, his veins ran heavy with Dilaudid and Oxycodone and Alprazolam and Methylphenidate and other pharmaceuticals to alleviate his physical pain and shut off his mind.

I spent five days in a sofa chair by his bedside. I had never seen him sit so still, never in the eighteen years I had spent with him. He had never looked so small. His body had shriveled; bones now outlined the parts of his arms that were before inhabited by muscle. His face was sallow and pruned to the jagged corners of his jawline. The biggest and toughest person in the world had been beaten, abused, and destroyed into a frail little fragment of what he once was. For the first time in my life I was bigger than him, and I hated it.

The man I saw in the bed, I thought, wasn’t the same man I had known, the man who raised me. The man who was always on the move, never living a passive life, the man who told me to hit that ridge again but this time hit it full speed—because he wanted me to live fast and take chances like he did—was no longer there.

He died Sunday, December 6, 2015, at 2:25 p.m.

Sometimes I wonder if it wasn’t the metastatic cancer that killed my dad but the stillness. For five days he lay in that hospice bed, motionless, unable to get up and move and live how he always had. I imagine the back of his mind was filled with little anxieties the entire time he was in hospice—the oil change my car needed, the water softener that needed to be refilled with salt, the shaky stair banister that he planned on replacing. It must have driven him crazy.

After he died, my mom, sisters, and I individually spent some time in the hospice room with my dad. Although his body had been essentially dead since he arrived at hospice, and I had spent five days with him like that, it was strange to see him now eternally still. I sat in the sofa chair by his bedside and stared at him. I wanted to say something but I couldn’t. There wasn’t anything blocking my ability to speak—my throat was clear and my voice box was smooth and ready. I didn’t say anything because I thought nothing needed to be said between us. Everything that needed to be said had already been said, and it was now the time for silence.

As I stared at my dad longer, I created this image in my head of him opening his eyes, turning toward me, smiling, and saying, “Get up, we gotta go home and snow blow the driveway!” Or, “Come on, we gotta run to the hardware store right quick!”

Part of me thought it would actually happen. I convinced myself enough of it that I inched my right index finger toward my dad and poked him on the shoulder to check if he was actually dead or just faking it.

He wasn’t faking it.

I laughed when I thought of how ridiculous I must have looked, how ridiculous I was for even having a thought like that. I like to think my dad, wherever he was, laughed too.


Had my dad been born in the Neolithic Period, he would have taken the newly developed scrapers, blades, and axes and cultivated a thousand acres of land overnight by himself.

Had my dad been born in Antiquity, he would have given Plato a wet willie and said, “Shut up with all that science talk and gimme that hammer over there.”

Had my dad been born in the Age of Discovery, he would have circumnavigated the world three times over before Magellan had even left port.

Instead, he was born on a summery day in April in 1966, and he was my dad.

At times I thought the only thing we had in common, and the only modicum of proof that I was his son, was how much we looked alike—we’re basically twins born thirty-one years apart. We thought differently, we acted differently, we lived differently. He liked to work; I liked to think. He was fearless and outgoing; I was demure and reserved. He lived fast and didn’t think about consequences; I preferred to take things slow.

My dad once said that people have a lot more in common than they realize, but it’s just that differences stick out a lot more and that’s what we notice. I had never given that much thought until after he died—I had always discredited it as another one of his hackneyed little aphorisms he liked to throw around sometimes to seem intellectual. The differences between my dad and me stood out much more when he was alive. But now with time apart—physically and emotionally—I’ve become privy to all that we shared in common. 

We had the same sense of humor and laughed at the same jokes—whenever he heard a new joke somewhere, he couldn’t wait to share it with me. We never took ourselves too seriously, no matter how serious of a situation we were in. We both liked mindless action movies with no plots. We both liked Detroit sports, and we even went to some Tigers, Lions, and Pistons games together. We both liked to eat our French toast smothered in ketchup.

They’re little things, but they’re little things that mean a lot to me.

And I know they meant a lot to him.

The day I flipped a go-kart on its head I thought I would never in a million lifetimes understand my dad. I thought I could never understand someone so different than me, someone maniacal enough to convince a six-year-old kid to attempt suicide by go-kart. It was a confluence of confusion and terror. I wasn’t even sure if my dad was human. But, as it turned out, I just didn’t yet understand the simplicity of his life philosophy.

My dad wasn’t content with putzing around in a go-kart in the brown barren field across the street. That wasn’t enough for him. He believed that, sometimes, you just gotta hit that ridge again but this time hit it full speed.




Riley Winchester’s writing has appeared or is forthcoming in Ligeia Magazine, Miracle Monocle, Sheepshead Review, Ellipsis Zine, Beyond Words, Pure Slush’s “Growing Up” Anthology, and other publications. He lives in Grand Rapids, Michigan.


Save Me and I Will Be Saved

by Riley Winchester

It was late in the morning on a day in late December of 2010. I was in a waiting room with my mom at The Johns Hopkins Hospital Pediatrics Center. One of the walls of the waiting room was made entirely of windows, and natural light lit up the room. Outside was the scene of a normal Baltimore winter: mounds of muddy snow pushed up against walls and corners; the wind was whipping and could be heard through the windows.

I was scanning through the most recent edition of Sports Illustrated Kids and I remember thinking two things. The first was I wished the magazine was the regular Sports Illustrated, not the kid’s edition, because I was thirteen years old and had been reading the regular editionfor over four years now. The second thought was of back home. I wondered if I would have been playing in a basketball game later that day if I was home, 660 miles back home in Michigan.  

A nurse called my name and I stood up to walk into the back rooms where I was to have blood work done and tests run to see if I was right for what I was getting into. It was when I stood up and made my way toward the nurse that I saw what had been around me. It was like I was in a painting, but not a Matisse or a Monet. There were kids—all younger than me—in wheelchairs, with breathing tubes, with IVs hooked into their arms. I saw heads with the fuzz of peaches, smooth heads with no hair, skinny arms and legs, bony faces, and jaundiced eyes.

Through this painting I walked, and I walked with all of my health. I had my hair, a full head of it. I had tissue and flesh covering my bones. I had no machines fixed into me, nothing external needed to provide me with life. I walked; I wasn’t rolled around by someone else’s push. My body was healthy, but I was scourged with guilt.


Over the course of forty years Edvard Munch painted six different renditions of The Sick Child. Each time, the content of the picture remained the same but the style changed. The picture is of a young girl, propped up on a white pillow, on her death bed. She is staring at a dark curtain. The curtain, it’s believed, is a symbol of death. By the young girl’s side is a woman, presumably the girl’s mother, who is so distraught and grief-stricken that she can’t bear to look at her dying child, so her head is down, looking at the floor.

The original version was painted with mostly whites, grays, and greens—giving it a dark hue and a somber tone. When Munch debuted the painting at the 1886 Autumn Exhibition in Christiana, critics and spectators dismissed it. They said it looked unfinished and disparaged Munch’s abandonment of line. The hands of the grieving woman, according to critics, lacked discernible details and looked like blobs. In his defense, Munch said, “I don’t paint what I see but what I saw.”

What Munch saw, and what inspired The Sick Child, was the death of his fifteen-year-old sister Johanne, who was only one year older than Munch at the time of her death in 1877. She died from tuberculosis in the Munch family home, and the memory of his sister perniciously losing her health, and ultimately her life, stayed with Edvard Munch.

Munch became obsessed with the picture, and he continued to rework its aesthetic for most of his life. He abandoned Impressionism for Expressionism, and every successive version became brighter. Munch never explained the change in brightness, but he said Expressionism allowed him to express what really stirred his mind. When writing about The Sick Child late in his life, Munch said, “It was a breakthrough in my art. Most of what I have done since had its birth in this picture.”


I was at Johns Hopkins to donate, not to be treated. My dad was suffering from Paroxysmal nocturnal hemoglobinuria (PNH) and had been for as long as I could remember. PNH is a rare disease found in the red blood cells that causes hemolytic anemia in its sufferers. Hemolytic anemia is when red blood cells are destroyed at a rate much faster than they are produced. Over time this is deadly, and the average life expectancy after a PNH diagnosis is only ten years. My dad’s ten years were approaching. But his ten years were approaching at an auspicious time.

My dad had been on the bone marrow donor registry for over four years and couldn’t find a full-match donor. Fortunately, however, haploidentical bone marrow transplants were gradually becoming more accepted in the medical field. In haploidentical transplants, the bone marrow of a half-matched donor is used. Because of developments at the Sidney Kimmel Cancer Center, half-match donations were now safe and came with very few side effects. The Johns Hopkins Hospital was the first American hospital to perform haploidentical transplants, and at the time it was the only American hospital to perform them.

The half-match in a haploidentical transplant is typically a family member of the bone marrow recipient. For my dad, this meant he would be receiving bone marrow from either his mom, his dad, his brother, one of his two daughters, or me—his only son. In the fall of 2010, the other potential donors and I were tested to see whose DNA closest matched my dad’s. Our blood was drawn in an outpatient lab at a Spectrum Health Hospital in Grand Rapids, Michigan, and was then shipped to another lab to be examined. I remember thinking the whole process felt very casual and almost mundane. We filled a vial, no bigger than the size of a fat crayon, with blood, and that was it. A life was at stake and one of us would be responsible for it. But it didn’t feel like it.

The tests came back and I was the closest match. Years later, I learned I was always going to be the match and the tests were done only to ensure my DNA wasn’t an anomaly and somehow severely different from my dad’s. In haploidentical transplants, the ideal half-match is young and healthy, as the recipient should receive the healthiest bone marrow possible. This eliminated my dad’s parents and his brother. Also, the donor should be the same sex as the recipient, otherwise hormonal issues can arise. It’s possible to do cross-sex transplants, but they’re avoided if they can be. This eliminated my sisters, leaving only me left. Yet I didn’t know any of this at the time, so I was surprised when I learned I would be the donor. In the end, however, it was always going be me and it was always going to be at Johns Hopkins.


On my way to the nurse, a young girl in a wheelchair stole my attention. She was maybe five years old, and she wore nothing to cover her bald head. She had on a little purple dress, and in her hand was a stuffed monkey, which she held closely. A doctor was talking to her and her parents, who were standing beside her. The doctor knelt down and asked the girl if it would be okay if she came back on Christmas Eve for more testing. She didn’t hesitate. She said, Yes! And she was happy to come back whenever, she said, because all her friends were there. Her parents didn’t object, and an appointment on Christmas Eve was settled. As I approached the nurse, she greeted me. I followed her through a set of doors, leaving the waiting room behind, and down a hallway.

After a standard checkup of my height, weight, and blood pressure, I was sent into another waiting room where I was to wait until the doctors were ready to run blood tests on me. This new waiting room was designed specifically for kids. There were Rubbermaid tubs filled with Legos and other toys, small tables—with the tops brightly graffitied and etched into—that had coloring books and colored pencils on them, puzzles, picture books, and a TV with an Xbox 360 plugged into it. I turned on the Xbox and the TV as I waited for my name to be called again. I hadn’t yet started playing a game when a boy, around seven or eight years old, walked into the room. He wore a hand-knitted hat on his head and had a bandage on his cheek.

Before him or I said anything, he picked up an extra controller that had been on one of the small tables. I asked him if he wanted to play with me, and he shook his head yes, but he remained silent. It was a hockey video game, and I set it up to where we would play each other. In the game the puck dropped, and we started playing. No goals were scored, and very little time in the game had passed, when a new nurse came in and called my name. I paused the game and stood up to leave. The boy finally spoke, and he asked me if I was leaving. The question halted me. I wasn’t prepared; all my mind could think of was the truth. I could make no excuse or give no palliative answer. I told him, plainly, I was sorry and that I had to leave.


Bone marrow is spongy tissue found inside the bones that produces hematopoietic stem cells. Red blood cells, white blood cells, and platelets develop out of these stem cells. Sometimes, hematopoietic stem cells turn cancerous or defective, slowing down or completely stopping the life-providing function of bone marrow. A bone marrow transplant is then needed to replace the bad bone marrow. It wasn’t until 1956 that a bone marrow transplant was successful. Doctors had been attempting transplants since the early 1900s, but Dr. E. Donnall Thomas was the first to perform the operation successfully. He extracted bone marrow from a healthy boy and gave it to the boy’s twin, who was suffering from leukemia.

The process hasn’t changed much since Thomas’s successful transplant in 1956: Bone marrow is extracted from the donor’s hip bone using bone marrow harvest needles—which closer resemble a drill bit than a needle—and then transplanted into the recipient’s bloodstream. It’s a safe process for the donor. Health concerns usually only arise in the recipient after the procedure, when their body is adjusting to the new bone marrow. 

Despite knowing the safety and efficacy of the procedure—doctors from Michigan to Johns Hopkins had all informed me of it—I had feelings of trepidation when I saw the needles that would be stuck into me, that would be driven into my hip bone, and that would suck the healthy marrow from me. But I was already at Johns Hopkins, I reminded myself; there was no going back now. And I had seen and been surrounded by so many hurting people, hurting kids, whose bodies were determined on destroying themselves from the inside out. It wasn’t fair to them. I had to do my part at Johns Hopkins.


The bone marrow transplant happened in early January 2011, and it was a success. After the transplant, when the anesthesia wore off, I woke up miserable and confused. My vision was sandy, it felt like a steel band was wrapped tightly around my head, and my mouth was so dry and coarse that I wondered if a small rodent had crawled into my mouth and died while I was unconscious. There were thick, bone white sheets hanging from the ceiling, separating me from the others who were also recovering in the same room.

The first thing I heard was the voice of a young boy who was talking to his dad. From the sound and timing of his voice, I could tell he was in the bed next to mine, to the right. He told his dad he wanted pancakes and he asked him when they would be able to eat them next. The dad promised that as soon as the boy recovered and was ready to leave the hospital, the first thing they would do is go out and eat pancakes. Shortly after he said this, the dad made the promise again, to make sure the boy knew.

I was supposed to lie in the hospital bed and recover for only two hours, but I stayed for over six. The surgery was harder on my body than I anticipated, than even the doctors anticipated. My body was weak, and every time I tried to stand and walk—walking was the true test to see if I was ready to leave, I was told—my legs gave out and I had to be caught by a nurse. To use the bathroom, I had to wrap my arms around a nurse and my mom and be guided to the toilet. At the toilet, I had to be held up by my mom because my legs couldn’t support my body.

As the hours went by, a new nurse was assigned to me—the original nurse’s shift had ended—my stomach started accepting food, things in my head became clearer, and my legs felt strong again. Finally I was able to walk on my own, and the nurses said I was okay to leave. I held onto a four-legged walker and shuffled, my mom beside me to catch me if my legs failed again. When I left, I could still hear the boy talking to his dad, but he was no longer talking about pancakes.


I spent many hours in The Johns Hopkins Hospital Pediatrics Center. I watched kids go into rooms to receive treatment, have their bodies prodded with needles and filled with radiation, swallow prescribed pills at calculated intervals throughout the day. During these times, I often found my mind stuck on a passage from a book I had read shortly before I left for Johns Hopkins: The Catcher in the Rye. The passage is from when Holden tells his sister Phoebe about a recurring dream he’s been having.

“Anyway, I keep picturing all these little kids playing some game in this big field of rye and all. Thousands of little kids, and nobody’s around—nobody big, I mean—except me. And I’m standing on the edge of some crazy cliff. What I have to do, I have to catch everybody if they start to go over the cliff—I mean if they’re running and they don’t look where they’re going I have to come out from somewhere and catch them. That’s all I do all day. I’d just be the catcher in the rye and all. I know it’s crazy, but that’s the only thing I’d really like to be.”

I wanted to be the catcher in the rye at Johns Hopkins. I wanted to stop all the sick kids before they went to receive treatment. I wanted to tell them they didn’t need it because I could help them. I wanted to give my kidneys to the kids with Wilms tumors. I wanted to give my liver to the kid with hepatoblastoma. I wanted to give all my bone marrow to the kids with leukemia. I wanted to give my eyes to the kids with retinoblastoma. I wanted to give my brain to the kid with brain tumors. I wanted to give my heart to the kid with hypoplastic left heart syndrome. I wanted to give myself to every sick kid until there was nothing left of me—until there was nothing left of me but there was all of them.

And with every kid I would say, Take it, take this! You can do more with it; you will do more with it! But I couldn’t. Like Holden, all I could do was think about it. All I could do was think and not do. 


I left The Johns Hopkins Hospital and was pushed through Baltimore-Washington International Thurgood Marshall Airport on a wheelchair, because I still couldn’t walk at full speed or for long periods of time. I left with my grandparents who had also been staying at Johns Hopkins. Our seats were upgraded to first class because of me. One of the airline workers saw me, a young teenager in a wheelchair, with two elderly people and she kindly told us our seats were now in first class. I was able to walk onto the plane, so I walked through the corridor that connected the terminal and the plane and found my seat in first class.

For a strange reason that I cannot explain, it felt good, at the time, to leave Johns Hopkins having experienced some pain and discomfort. Perhaps it was a combination of guilt for being healthy and feeling that I had done nothing for the kids, that I had even abandoned some, who I had so badly wanted to do something for. Of course, I couldn’t have done anything for them, but even at thirteen—an age where I should have known this, and I think I did know this but still told myself differently—I felt that there was something I could have done, even if I didn’t know what it was.

But I had done something at Johns Hopkins, and it was the reason for my pain and weak legs and fatigued body. I donated bone marrow to my dad; his PNH was cured and he was healthy. My grandparents still had their son, my mom still had her husband, and my sisters and I still had our dad. None of that would have been so if it weren’t for what I had done, but I wasn’t thinking about that.


Abraham Jacobi was born to impoverished parents in a small town in central Germany in 1830. Jacobi was a sick child from birth. In fact, he was so sick and his parents were so poor that they were advised by a doctor to not spend any money on treating the infant Jacobi, because there was little chance he would survive into adolescence. His parents listened to the doctor, but Jacobi survived. In his early twenties, Jacobi earned his Doctor of Medicine but shortly after was arrested for his radical political beliefs. After two years in a Cologne prison, he escaped and immigrated to New York, where he set up an affordable pediatric clinic.

Jacobi found success in America. His clinic was visited by many and he gained popularity in the medical field as both a physician and a pioneer in the field of pediatrics. In 1859, he published Midwifery and Diseases of Women and Children—the first medical text to take an earnest interest in treating sick children. Jacobi was one of the first physicians to understand the importance of treating sick children differently than sick adults, stating, “They are not merely small adults.” He was also the first physician to emphasize bedside pediatrics. Before Jacobi, the treatment of children was often emotionally distant due to high mortality rates among sick children and an overall vein of pessimism in pediatrics—losing multiple patients a week was normal for a pediatrician in the nineteenth century.

By the end of his life, Jacobi had written over 4,000 pages, collected in eight volumes, on pediatrics. He wrote on the etiology of diseases in children, the treatment of children, the philosophy of the pediatrician, and the necessity of pediatrics. In addition, he opened pediatric wards in hospitals across New York, and he served as the first Chair of the Section of Pediatrics of the American Medical Association. Today, Jacobi is known as the Father of American Pediatrics.

But even the Father of American Pediatrics could only do so much for his patients. The first pediatric disease Jacobi became interested in was diphtheria—a bacterial infection in the nose and throat—and he’s credited with inventing the indirect laryngoscope to examine children for the presence of diphtheritic membrane. Jacobi was considered an expert on the disease by his medical contemporaries. But at the age of eight, Jacobi’s only son, Ernst, contracted diphtheria. And, for Jacobi, there would be no saving Ernst. By the time the disease had been discovered in him, it was too late. Ernst Jacobi, the son of Abraham Jacobi, died at eight years old.


We landed in Grand Rapids and I was wheeled through Gerald R. Ford International Airport in one of their provided wheelchairs. Every time I caught someone’s attention and they looked at me for longer than a second with a stare of sympathy, I wanted to stand up. I wanted to stand up and tell them I was fine and I didn’t need them to feel bad for me and that there are kids all over who you should feel bad for but I’m not one of them. There are kids who you should feel bad for and I was with some of them but I couldn’t do anything for them.

I was wheeled up to the doors of the airport where there was an area to drop off the airport’s wheelchairs. I found a spot for my wheelchair and left it there; I was eager to abandon it. It was early in the morning, around 4 a.m., and outside everything was bright and lit up by streetlights and headlights from cars and buses. My grandma offered to help me walk as we looked for the car. I told her I was fine and I could do it on my own.

In the car, going south out of Grand Rapids, I started to feel different. It’s a source of stress and physical exhaustion to be in an environment like I was in, and now that I had been out of it for some time, I could feel myself recovering. I didn’t think I left Johns Hopkins a victim of any kind or that I had been unfairly exposed to something I shouldn’t have. I thought I had seen something, something unpleasant, and there were things that could come of it. What they were, I didn’t know, but I knew they were somewhere.

If I knew then what I know now, I would have known what those things were. That no matter what you do, you’ll always wish you had done more or think you could have done more, so it’s best to find pride in the things you have done and be kind to yourself. That hurt isn’t transferred like currency, and you being hurt won’t abate anybody else’s hurt. That you can’t make the world better all on your own, but you can start small, do what you can, and hope it makes your part of the world better. That when you sit and try to think about the big, profound things, your mind will get hung up on the little things like a stuffed monkey or a hand-knitted hat or pancakes, and then you’ll realize those were the big things all along. And a lot of what you learn will sound familiar, and that’s because it is; it’s not new, they’re old platitudes. But until you find something real to attach them to, they’ll never make any sense.


On the way home, we stopped at a McDonald’s drive-thru because we hadn’t eaten since we left Baltimore and no other restaurants were open. We waited a long time for our food, very long for being the only customers. It was quiet in the car—there was no radio playing and we were too tired for small talk. When our food finally came out, my order was wrong, and my grandpa said his coffee was cold. But none of these things seemed important or worth talking about, not now.


Riley Winchester lives in Grand Rapids, Michigan. He recently graduated from Grand Valley State University, where he earned a B.A. in History. His work is forthcoming in Waymark.